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Support for Parents with Children who have SEND Needs

Information and Support for Parents with children who have SEND Needs:

ACE – the Advisory Centre for Education – Gives good information and advice about Admissions, Attendance, Bullying, Exclusions and Special Educational Needs.

ACT Foundation – Offers grants to enhance the quality of life of people in need, for example grants for equipment or adaptations where the Local Authority cannot help.

Anti-bullying Alliance – Gives useful information and advice about how to deal with bullying and the impact that bullying can have.

Association of Young People with ME –  A chance for young people confined to home by ME to have online friends and discussions and to find out about their condition.

British Dyslexia Association – A useful website with information about dyslexia, assessment and identification, exam concessions etc.

Bullying UK – Offers on line advice and support to try to prevent or deal with bullying including information for children.

Cambian Education – The largest provider of specialist residential education and care for young people with Autism and Aspergers Syndrome in UK. – Child and adult mental health services.

Childrens Legal Centre – Provides legal advice, information and representation for children and young people.

Contact a Family (CaF) – Are an excellent organisation providing information and support to parents of children with many different sorts of disability, including parent-parent support. They also provide comprehensive well written booklets written in a clear concise manner for parents, teachers and young people. – CaF have produced a guide for dealing with bullying.

Cerebra – Help to support parents/carers with children who have sleep issues. They also have a stress helpline. – Civil Legal Advice (Legal Aid) – Free legal advice on education law matters paid for by legal aid. SEN, discrimination and judicial review (e.g. for children not receiving education/unlawful exclusions etc). For anyone financially eligible to legal aid. – Down’s Syndrome Association – The aim of the DSA is to help people with Down’s syndrome to live full and rewarding lives. 

Dyslexia research trust – For diagnosis service.

Dyspraxia Foundation – Offers information and supports individuals and families affected by developmental dyspraxia through books, suggestions, a teen newsletter, and an adult support group.

Education Otherwise – A UK based membership organisation which provides support and information for families who choose to educate their children at home.– A national charity offering information support and advice about parenting,including challenging behaviour, emotional wellbeing, teenagers etc. Details about specialist advice and parenting groups in your area.

Family Planning Association – Has books specifically for parents of children with disabilities, including workbooks about growing up. – Information, Advice and Support Services – IAS Services have a duty to provide information, advice and support to disabled children and young people, and those with SEN, and their parents. They are statutory services and are free, impartial and confidential. – IPSEA – Independent Parental Special Education Advice, a charity which offers legal advice, support and training to ensure children and young people with Special Educational Needs and Disabilities (SEND) access the right education.

Jungle memory – Online memory training for youngsters aged 6-16. Requires a subscription. – Memory boosters for children aged 4-11, especially those with Special Educational Needs. – Mental Health Foundation has on-line information about anxiety, depression, ADHD etc. – Boosting working memory programs for children 2-11 or 11-adult. – My life my choice – helping people speak up and develop their skills. – The National Autistic Society give useful advice to parents of autistic children, including an online directory which will pull together information according to your child’s age diagnosis and where they live. – National Deaf Children’s Society – have an informative website including information about a new software reader for spoken text on the web. – Find information about ASD, SPLD and other medical conditions. – eLearning CD-Roms for young people with a learning disability/Autism. Courses currently available are: Your school day (5-10 years), Travel with me (12+ years), The teenage years (13-19 years). An evaluation copy can be downloaded from the Raising Horizons website. – There are around two million people in the UK with sight problems and RNIB (Royal National Institute of Blind People) is the leading charity offering practical support, advice and information to anyone with a sight problem. Their pioneering work helps not just with braille, Talking Books and computer training, but with imaginative and practical solutions to everyday challenges. – Supporting head injured pupils in school – SHIPS supports pupils who have sustained a head injury, by observing the subtle differences in their way of learning due to the injury they have sustained, and advising teachers on appropriate ways of managing their learning. – Singing Hands have produced a video with 25 songs for children who are learning signing before their speech has developed or have hearing or communication difficulties. – Sense give legal advice and assistance to deaf blind individuals or their family members and supporters.

SOS SEN – A national charity aiming to empower parents and carers of children and young people with SEN and disabilities to access the help they are entitled to, particularly in the education system. – Soundabout shares information about special music making workshops for children, young people and adults with disabilities. – Talking Point provides a guide to speech and language services and useful links to other associated websites. – Young Minds is a national charity committed to improving the mental health of all children and gives advice about depression, eating disorders, and other mental health issues affecting children. – Young Peoples Inclusion Network provides online guidance about both strategy and putting Inclusion into Practice covering issues such as Leisure and Sports Services, Youth Provision, Transport and Independent Living. – Multi Sport – Developing sports activities for children and young people with Cerebral Palsy. – Provide training and the opportunity to compete locally and nationally in a variety of sporting activities for children and young people with a learning disability. Organising new activities where specialist sports activities do not exist.